I posted this May 9th on Lily's Facebook page (Never Forget Lily Grace):
Happy nurses week to all of the wonderful nurses that took care of my Lily Grace and that continue to care for sick children all over the world!!
This next statement may not make sense to some but it will make complete sense to others:
When you have a child or loved one with a terminal or chronically severe illness...the staff at the hospital, doctors, doctors offices, etc can become an extension to your family or so it can feel that way..
For the last 20 weeks of my pregnancy & then for Lily's entire life, I was getting tests, going to the doctors office, going to the hospital, seeing specialists and then practically living at the hospital.... it was such a big part of my life.
The day that my baby Lily passed away in my arms and I had to walk away from that hospital... that was unexplainable pain. Her nurses and the staff at Kosair took such great care of not only Lily but also of my family too. Lily always had 1-2 nurses assigned to be a one on one nurse (2 when she was on ECMO) so if you can imagine the bonds that a family can feel when they are living in the moment, hoping & praying that their child will live and they are looking to the staff for hope or even comfort when all hope is going away or gone..
Then they lose their loved one and what has become their life.. It is all gone at the same time.. It is such an incredible loss. You go from one all consuming situation to another.. dealing with a complete loss of everything..of your child!!! It's all gone.. everything that was connected to your last moments with your child.. it's gone.
So whether the nurses, doctors, or staff (therapists, chaplains, etc) realize it or not.. they are part of the loss too. In my eyes, they will always be an honorary family member and my Lily Grace will be their Guardian Angel. They fought for her to live as much as she fought to live and I'm thankful for that!
I'm sorry that I don't have a picture that shared all of the wonderful staff at Kosair!! Just because you are not in this picture doesn't mean that you don't mean as much to me, my Lily, and my family...
I am forever grateful! Thank you to all of the nurses (and other staff) out there that took care of my Lily, other angel children gone too soon, continue to care for sick children warriors now, and the nurses that will be taking care of my Mom tomorrow when her cancer is being removed!
Happy Nurses Week!!
. Happy Medical Staff Week to everyone else too!!! This next statement may not make sense to some but it will make complete sense to others:
When you have a child or loved one with a terminal or chronically severe illness...the staff at the hospital, doctors, doctors offices, etc can become an extension to your family or so it can feel that way..
For the last 20 weeks of my pregnancy & then for Lily's entire life, I was getting tests, going to the doctors office, going to the hospital, seeing specialists and then practically living at the hospital.... it was such a big part of my life.
The day that my baby Lily passed away in my arms and I had to walk away from that hospital... that was unexplainable pain. Her nurses and the staff at Kosair took such great care of not only Lily but also of my family too. Lily always had 1-2 nurses assigned to be a one on one nurse (2 when she was on ECMO) so if you can imagine the bonds that a family can feel when they are living in the moment, hoping & praying that their child will live and they are looking to the staff for hope or even comfort when all hope is going away or gone..
Then they lose their loved one and what has become their life.. It is all gone at the same time.. It is such an incredible loss. You go from one all consuming situation to another.. dealing with a complete loss of everything..of your child!!! It's all gone.. everything that was connected to your last moments with your child.. it's gone.
So whether the nurses, doctors, or staff (therapists, chaplains, etc) realize it or not.. they are part of the loss too. In my eyes, they will always be an honorary family member and my Lily Grace will be their Guardian Angel. They fought for her to live as much as she fought to live and I'm thankful for that!
I'm sorry that I don't have a picture that shared all of the wonderful staff at Kosair!! Just because you are not in this picture doesn't mean that you don't mean as much to me, my Lily, and my family...
I am forever grateful! Thank you to all of the nurses (and other staff) out there that took care of my Lily, other angel children gone too soon, continue to care for sick children warriors now, and the nurses that will be taking care of my Mom tomorrow when her cancer is being removed!
Happy Nurses Week!!
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