Heads up.. I told you within the last few weeks that I would be sharing a picture of Lily after open heart surgery... I haven't been ready but I am.. It's graphic but it was our reality & so many other heart families reality too... Check back
Happy 11 month birthday Lily Grace.. I can't believe you were born 11 months ago today
Our Lily Grace before and after open heart surgery..
Open heart surgery is a reality for so many, including our Lily Grace..
Lily had up to an 80% chance of survival and many children that go through open heart surgery have an even higher survival rate so many kids can look like this and still survive while living a life with high quality..
You could see her heart beating through that plastic and yes.. her chest is left open.. The plan was to close it after a few days but it was never possible..
This is just a glimpse into what heart families may experience.. Most families have a more positive outcome than our precious Lily.. she fought hard & so did the doctors, surgeons, and nurses for her to survive.. Her body just couldn't make it... she was a puzzle..
Her scans showed strong heart function yet she couldn't survive without the extra support.. It was a big roller coaster of ups and downs..
When she went into cardiac arrest and her heart stopped (twice).. They had direct access to her heart to save her.. It's unbelievable.. I have video too and you can see her heart pumping..
Happy 11 month birthday in heaven sweet Lily Grace
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