Very random but I want to thank everyone who came to Lily's visitation and funeral.
It has been 6 months and I still haven't written thank you notes.. I just can't. I have a spreadsheet of everything that I need to say thank you for but.. I just can't even look at it to be honest.
Lily has a prayer bear that contains prayers/ thoughts from family and friends.. I still haven't looked at those.. I just can't..
I can only imagine how hard it was to come to my daughters funeral or visitation. It meant the world to me to have an open casket and I know that had to be hard on so many people but I honestly didn't care because what mattered was spending that last amount of time with her as I could.. her physical body I mean. I do care about everyone so I hope that doesn't sound harsh..
The desire to have an open casket and for the funeral home to do what they could to help make Lily as beautiful as they could so we could see her meant more to me than anyone may ever know.. I had pregnant women come to Lily's visitation and I KNOW that had to be hard or even families that just had babies recently came to her visitation and funeral... I KNOW that had to be hard.
I just felt that I should say thank you for coming and thank you for putting your fears, feelings, being uncomfortable.. all of that aside to say goodbye and to show love & support for my sweet Lily... I will never forget you all and what you did for me that day...
I don't really have regrets on her funeral because I think it was beautiful & peaceful... I sometimes wish I would have spoken but I spoke A LOT to Lily so she knows what my heart was saying and continues to say.. Thank you to everyone who took the time to visit my Lily before and/ or after she became an angel.. even if that is through her Lily Grace page.. it means a lot to me.
I will end this post with a note that I received on my personal page by a dear sweet friend who came to Lily's visitation/ funeral.. maybe that's why this post popped in my head tonight.. here it is:
"Amy-Lou,
For whatever reason you've been on my mind a lot more lately. While sitting at a stop light this morning, I was admiring the fleur de lis on a Louisville road sign and immediately thought of Lily. At that same moment I heard a radio station mention the "Parents Left Behind" online support group. Just wanted to let you know Lily visited with me today and wanted me to tell her mommy! She loves you so much and is SO proud of you... just like the rest of us!!! :-)"
I needed that message from Lily and it is crazy how you ask for signs and angels on earth can sometimes deliver the messages.. ♥ Thanks Jackie-Lou ♥
P.S. fleur de lis means Flower of Lily.. just in case you were wondering :)
Wednesday, March 6, 2013
Ladybugs... Lilybug...
Ladybugs: Did you know that ladybugs are a sign to us from Lily? Why??? We called her Lilybug & her Aunt Jessica even drew a ladybug that said "Lilybug" to hang in her hospital room.
So the other night Lily's big sister Makayla was so excited to show me something.. She was putting her doll to bed & she said her doll wanted to read a book.. drumroll... she was reading "Ladybug Girl" which is a book that Makayla picked out from the library.
It was so sweet so I had to share. Makayla said "She's reading about Lily". ❤❤❤
So the other night Lily's big sister Makayla was so excited to show me something.. She was putting her doll to bed & she said her doll wanted to read a book.. drumroll... she was reading "Ladybug Girl" which is a book that Makayla picked out from the library.
It was so sweet so I had to share. Makayla said "She's reading about Lily". ❤❤❤
Please meet and Pray for a new Heart Warrior Liam
Please welcome Heart Warrior Liam who was just born on February 28, 2013. He is the son to Tiffany Riley McMeeken.
On Wednesday, February 27, 2013- I received a message from Tiffany McMeeken that said:
I am giving birth tomorrow through scheduled c-section to our little heart warrior Liam first thing in the morning.. I have seen you share others pages to get some prayers going for them I was wondering if you minded sharing our page.. He has been diagnosed during my pregnancy with a few heart defects.. But we will of course find out more tomorrow when he is born and they can do an echo on him.. Thank you so much in advance.. I enjoy reading all the stories of other heart warriors..
I now have more information including a picture of baby Liam and the link to his Facebook page so it’s the perfect time to share. Please pray for this family as I remember all too well how scary and overwhelming this time can be.. you are so full of excitement, happiness from having a baby but then fear of the unknown. I am asking all of Lily’s friends and family to PLEASE visit and like Liam’s page: https://www.facebook.com/CHDliamshope?fref=ts
More information on Liam from his Mommy on the day he was born: the doctors found out that he has critical aortic stenosis, mitral valve stenosis. a few VSDs, Coarctation of the aorta, and borderline Hypoplastic Left Heart Syndrome. We are going to take it one step at a time- that is what the doctors want to do. He is having a heart catherization of the aortic valve so we will see what happens and then go to the next step..
He was born weighing a whopping 8 lbs 11 oz and is 19 3/4 inches long. He is in the pediatric ICU. *Late in the day that he was born she said the following: We haven’t been able to hold him but I did have the strength to get up at about five and go see him for about 45 minutes.. He has stolen my heart for sure..
Don’t forget to visit and like his page.. plus don’t forget to say many prayers for sweet Liam and his family.. Here is the link again: https://www.facebook.com/CHDliamshope?fref=ts
Please tell them that Lily sent you!! Thanks everyone!!! Much love from Lily’s Mommy- Amy
On Wednesday, February 27, 2013- I received a message from Tiffany McMeeken that said:
I am giving birth tomorrow through scheduled c-section to our little heart warrior Liam first thing in the morning.. I have seen you share others pages to get some prayers going for them I was wondering if you minded sharing our page.. He has been diagnosed during my pregnancy with a few heart defects.. But we will of course find out more tomorrow when he is born and they can do an echo on him.. Thank you so much in advance.. I enjoy reading all the stories of other heart warriors..
I now have more information including a picture of baby Liam and the link to his Facebook page so it’s the perfect time to share. Please pray for this family as I remember all too well how scary and overwhelming this time can be.. you are so full of excitement, happiness from having a baby but then fear of the unknown. I am asking all of Lily’s friends and family to PLEASE visit and like Liam’s page: https://www.facebook.com/CHDliamshope?fref=ts
More information on Liam from his Mommy on the day he was born: the doctors found out that he has critical aortic stenosis, mitral valve stenosis. a few VSDs, Coarctation of the aorta, and borderline Hypoplastic Left Heart Syndrome. We are going to take it one step at a time- that is what the doctors want to do. He is having a heart catherization of the aortic valve so we will see what happens and then go to the next step..
He was born weighing a whopping 8 lbs 11 oz and is 19 3/4 inches long. He is in the pediatric ICU. *Late in the day that he was born she said the following: We haven’t been able to hold him but I did have the strength to get up at about five and go see him for about 45 minutes.. He has stolen my heart for sure..
Don’t forget to visit and like his page.. plus don’t forget to say many prayers for sweet Liam and his family.. Here is the link again: https://www.facebook.com/CHDliamshope?fref=ts
Please tell them that Lily sent you!! Thanks everyone!!! Much love from Lily’s Mommy- Amy
Tuesday, March 5, 2013
Don't you worry..Don't you worry child...
Lily's 6 year old sister Makayla... her way of grieving the loss of her baby sister: Some of the silly, sweetest moments.. can be the saddest moments.. Let me explain:
"Don't you worry, don't you worry, child.
See heaven's got a plan for you.
Don't you worry, don't you worry now."
That song is catchy and I'll sing it to my kids just being silly.. so last week I was so singing the "Don't you worry, don't you worry child... Heaven's got a plan for you" part of a song with a silly voice and emphasis like the singer does but my version was even crazier..
Makayla and I started changing the lyrics.. I was being silly and so was Makayla but where I would say things about "Don't you worry child..Don't you worry child..Mommy's making breakfast for you" or "Don't you worry child..Don't you worry child.. I'm going to draw a picture for you.." well Makayla's were much deeper than mine..
"Don't you worry.. don't you worry child.. You'll be out of the hospital soon"
"Don't you worry... don't you worry child... Your sisters gonna live for you"
"Don't you worry... don't you worry child... You'll be coming to our home soon.."
"Don't you worry... don't you worry child.. Mommy's never gonna forget you.."
Innocent moments like those can make your heart happy because of the innocence and love shared but can also hurt because your 6 year old child should not know of the loss & pain of losing their sibling.. They should have silly lyrics to make up & not deep, thoughtful lyrics because of the pain they feel from losing their sister..
Makayla was still laughing and goofing around so I went along with it and I gracefully wiped tears as I danced so she wouldn't see me cry during our playful time.. I didn't want her to stop having fun and being silly plus I know it's important for her to express these feelings so I wanted her to feel comfortable doing so...
She's right Lily..."Don't you worry.... don't you worry child.. Your families gonna live for you.." ❤❤
**The real song: http://www.youtube.com/watch?v=VRy8lGDnKlY
"Don't you worry, don't you worry, child.
See heaven's got a plan for you.
Don't you worry, don't you worry now."
That song is catchy and I'll sing it to my kids just being silly.. so last week I was so singing the "Don't you worry, don't you worry child... Heaven's got a plan for you" part of a song with a silly voice and emphasis like the singer does but my version was even crazier..
Makayla and I started changing the lyrics.. I was being silly and so was Makayla but where I would say things about "Don't you worry child..Don't you worry child..Mommy's making breakfast for you" or "Don't you worry child..Don't you worry child.. I'm going to draw a picture for you.." well Makayla's were much deeper than mine..
"Don't you worry.. don't you worry child.. You'll be out of the hospital soon"
"Don't you worry... don't you worry child... Your sisters gonna live for you"
"Don't you worry... don't you worry child... You'll be coming to our home soon.."
"Don't you worry... don't you worry child.. Mommy's never gonna forget you.."
Innocent moments like those can make your heart happy because of the innocence and love shared but can also hurt because your 6 year old child should not know of the loss & pain of losing their sibling.. They should have silly lyrics to make up & not deep, thoughtful lyrics because of the pain they feel from losing their sister..
Makayla was still laughing and goofing around so I went along with it and I gracefully wiped tears as I danced so she wouldn't see me cry during our playful time.. I didn't want her to stop having fun and being silly plus I know it's important for her to express these feelings so I wanted her to feel comfortable doing so...
She's right Lily..."Don't you worry.... don't you worry child.. Your families gonna live for you.." ❤❤
**The real song: http://www.youtube.com/watch?v=VRy8lGDnKlY
Lily's funeral was 6 months ago on September 4, 2012...
Posted on Lily's Facebook page "Never Forget Lily Grace" yesterday March 4, 2013:
Lily's funeral was 6 months ago today on September 4, 2012. ❤❤
Lily...six months ago today was the last time that I saw your physical body, kissed you, put lotion on you.. sang to you... spent time with you before...well before your beautiful bed with a satin lining was closed.... inside that bed with you was a new sea horse that was playing for you, pictures of your Daddy & I plus your brothers and sisters... Copies of the prayers/ thoughts from your Lily Bear...
You are forever missed, never forgotten & always loved. I look at your pictures/ videos daily... I'm sure you know though ❤❤ love you Lilybug!! ❤❤
***Collectively we have more than 1,000 pictures from Lily's 18 days here on earth & this picture collage could only hold six pictures.. this is a brief picture timeline of her time here on earth with us...
Lily's funeral was 6 months ago today on September 4, 2012. ❤❤
Lily...six months ago today was the last time that I saw your physical body, kissed you, put lotion on you.. sang to you... spent time with you before...well before your beautiful bed with a satin lining was closed.... inside that bed with you was a new sea horse that was playing for you, pictures of your Daddy & I plus your brothers and sisters... Copies of the prayers/ thoughts from your Lily Bear...
You are forever missed, never forgotten & always loved. I look at your pictures/ videos daily... I'm sure you know though ❤❤ love you Lilybug!! ❤❤
***Collectively we have more than 1,000 pictures from Lily's 18 days here on earth & this picture collage could only hold six pictures.. this is a brief picture timeline of her time here on earth with us...
Meet baby Paige.. met through The Lily Grace Project: Hairbows for Healing
Meet our NICU (Neonatal Intensive Care Unit) warrior Paige that we met through the Lily Grace Project: Hairbows for Healing at Kosair Children’s Hospital in February 2013. Daughter to Lori & Mikie Hall.. and little sister to 4 year old Mattie.
Paige’s story as told by her Mommy:
When I was asked to share my daughter’s story with our friends on the Lily Grace page I spent days beginning to type our story, and having to stop because emotions got the best of me..... but I think that I’m finally ready to share our journey from the beginning.
Paige Livian Hall is a preemie at the Kosair’s NICU who loves to wear her hair bows from Never Forget Lily Grace!! But what many do not know about my sweet Paige is that 10 weeks ago I was told that she would NEVER survive outside of my womb!!!
At my 20 week ultrasound my OBGYN found that I had little to no amniotic fluid. I was sent to a group (which we will leave unnamed) of Maternal Fetal Medicine (MFM) Doctors to have them look into this issue! As I had never heard of someone having no amniotic fluid, I was absolutely terrified but hoping that I would get some type of good news & answers once I saw the specialist!! I got anything but that!!!
The specialist informed me I had NO amniotic fluid!! The good news was that our baby girl had a bladder with 2 functioning kidneys as well. So the amniotic fluid was being made but I somehow was leaking the fluid... the Drs only answer was to send me home for two weeks to do partial bed rest 16 hours a day and see if time and rest would allow the possible tear in my amniotic sac to heal!
IF in two weeks I still was low on fluid, I was told that he recommended electively terminating my pregnancy! Those words cut thru my heart like a knife!!! I begged for options and was told there was none! That with low fluid I would go into labor at any point, that our baby would have no way of developing her lungs enough to survive once born, would experience multiple mental and physical deformities that if she did survive would cause a very low quality of life.
I went home and did my own research online.. searching for anything that I could to help my baby’s chance for survival. I found a few mommas that experienced my exact situation. Some mommas with success stories but just as many mommas with stories that didn't end the way I wanted my baby’s story to end! I was determined to find answers. I just knew there had to be something that could be done to at least give her a chance.
A week after I saw the Dr I began having what I thought to be contractions. I was admitted to University Hospital where I was soon sent home because being only 22 weeks pregnant.. there was nothing they could do for my baby! I was told that I would be readmitted once labor fully began or once I hit the magical 24 weeks point where they can assist the baby’s survival! I was devastated, scared and very uncomfortable.
My doula had sent me the name of a Dr that she highly recommended.... I decided the day that I was discharged to make an appointment with this one last Dr and see if maybe..just maybe he would help me! Within two days this Dr fit me into his schedule!
The day I saw him, my husband and I pleaded with him as he was our last hope. He immediately took me to ultrasound and preformed it himself. To his surprise he found a perfectly healthy 22 week baby and 3.2 centimeters of fluid (9-24 cm is normal) I asked him how much fluid was needed to make this pregnancy viable and he informed me that though it is still very low, as long as he found 1 cm or more he knew the baby had fluid to develop her lungs!!!!!
As I finally for the first time in two weeks felt I could take a sigh of relief, I began to feel the contractions coming back!
My new Dr informed my husband and I that on 12-22-12, he was admitting me to the hospital where I would remain until our baby was born.. Upon arrival I had IV fluids, multiple IV antibiotics (to prevent the possible deadly infection that I and my baby were very high risk to get) frequent heart monitoring, meds to stop contractions and received ultra sounds 3 times a week to check on the baby & my fluid levels!!
I spent Christmas, New Years and the entire holiday season in the hospital. I missed seeing my 4 year old daughter’s face Christmas morning when she woke up! Though it was very difficult… I knew I was doing all I could to give our baby Paige a fighting chance!!
As the weeks passed I was relieved to finally hit that magical 24 weeks! Just knowing if she was born she would have a chance made me feel a bit better!! Though she would be higher risk then even a typical preemie due to the low fluid!
On January 17th at 25 weeks and 5 days my water fully broke. We tried everything to stop labor but nothing was working! But like the dr said at this point every hour Paige was in the womb was beneficial. The next morning after 24 long hours of labor I began to experience horrific abdominal pain! I was then rushed to the operating room where my husband and I were informed that my placenta was abrupting & it was time to have our baby!
On January 18, 2013 (my Dads 60 birthday) at 10:27 am (25w5d) weighing 2 lbs even, we gave birth to our little miracle baby Paige!!! We had a close call with her the 1st day! Her oxygen dropped for 6 min and wouldn't bounce back up. Just when the Dr’s thought we were going to lose our baby, once again Paige proved them wrong and brought her oxygen back up!
The baby who I was told had 1 in 1,000 odds of survival decided she was going to be that 1!!!!
She is now 6 weeks old, weighs 3lbs 2oz, is off the ventilator onto the nasal cannula, advanced into the intermediate nicu and preparing to be moved out of the incubator and into a crib!!!
I owe my daughter’s life to mothers intuition (I knew my baby was strong, I could feel her kicking & there was no way that I was letting anyone tell me otherwise!!)
The Dr who I now look up to for giving us a chance and to the nurses & doctors from Kosair’s...I know that my sweet Paige is so strong and fighting so hard to be here!!! But Kosairs NICU has made her future possible!
These past months have been a blessing but very hard on our family at the same time. The day that my husband and I walked in to find the bow that was left with Lily’s picture on it, we were overwhelmed with joy! It brought a much needed smile to both of our faces! She was too small at the time to wear clothes and last week for the first time I was able to put her "lily grace bow on her"
Paige now wears her bow frequently as it’s the only one small enough to fit her & I tell her every time about sweet Lily Grace! When Paige grows out of her bow, it along with lily's picture and story will be placed in her baby book! Not only is Lily being Remembered now, her story will be told throughout the years, every-time we open up her baby book to reminisce!
Your story and what all you all do encouraged me to want to give back as well !!!! So my husband and I have signed up and started a team to walk in the march of dimes this year!! We will be captains of our team "Prayers for preemie Paige".
I pray since the walk is in May and the goal for Paige to come home is her due date April 27th..... That maybe Paige can join us as we walk to help babies such as our sweet girl!!! If indeed she is present for the walk, I would love for her to be wearing one of her "lily grace" bows and have Lily’s picture and story attached to the stroller or wagon so she will be there with us!!
If it wasn't for your inspiration I don't know if I would have gotten around to signing up and putting all of this together! So I want to be sure Lily is with us to continue to inspire me and share the story! Thank you for sharing Lilys story, putting a smile on our face when it was very much needed & inspiring me to get up, get out there and give back myself!!!
**Thanks Lori and Mikie… this is Lily’s Mom and this story and the nice things you said.. geez.. definitely made me cry. My family and friends will be so happy to hear how much the Lily Grace hairbow meant to you and your family!
Paige’s story as told by her Mommy:
When I was asked to share my daughter’s story with our friends on the Lily Grace page I spent days beginning to type our story, and having to stop because emotions got the best of me..... but I think that I’m finally ready to share our journey from the beginning.
Paige Livian Hall is a preemie at the Kosair’s NICU who loves to wear her hair bows from Never Forget Lily Grace!! But what many do not know about my sweet Paige is that 10 weeks ago I was told that she would NEVER survive outside of my womb!!!
At my 20 week ultrasound my OBGYN found that I had little to no amniotic fluid. I was sent to a group (which we will leave unnamed) of Maternal Fetal Medicine (MFM) Doctors to have them look into this issue! As I had never heard of someone having no amniotic fluid, I was absolutely terrified but hoping that I would get some type of good news & answers once I saw the specialist!! I got anything but that!!!
The specialist informed me I had NO amniotic fluid!! The good news was that our baby girl had a bladder with 2 functioning kidneys as well. So the amniotic fluid was being made but I somehow was leaking the fluid... the Drs only answer was to send me home for two weeks to do partial bed rest 16 hours a day and see if time and rest would allow the possible tear in my amniotic sac to heal!
IF in two weeks I still was low on fluid, I was told that he recommended electively terminating my pregnancy! Those words cut thru my heart like a knife!!! I begged for options and was told there was none! That with low fluid I would go into labor at any point, that our baby would have no way of developing her lungs enough to survive once born, would experience multiple mental and physical deformities that if she did survive would cause a very low quality of life.
I went home and did my own research online.. searching for anything that I could to help my baby’s chance for survival. I found a few mommas that experienced my exact situation. Some mommas with success stories but just as many mommas with stories that didn't end the way I wanted my baby’s story to end! I was determined to find answers. I just knew there had to be something that could be done to at least give her a chance.
A week after I saw the Dr I began having what I thought to be contractions. I was admitted to University Hospital where I was soon sent home because being only 22 weeks pregnant.. there was nothing they could do for my baby! I was told that I would be readmitted once labor fully began or once I hit the magical 24 weeks point where they can assist the baby’s survival! I was devastated, scared and very uncomfortable.
My doula had sent me the name of a Dr that she highly recommended.... I decided the day that I was discharged to make an appointment with this one last Dr and see if maybe..just maybe he would help me! Within two days this Dr fit me into his schedule!
The day I saw him, my husband and I pleaded with him as he was our last hope. He immediately took me to ultrasound and preformed it himself. To his surprise he found a perfectly healthy 22 week baby and 3.2 centimeters of fluid (9-24 cm is normal) I asked him how much fluid was needed to make this pregnancy viable and he informed me that though it is still very low, as long as he found 1 cm or more he knew the baby had fluid to develop her lungs!!!!!
As I finally for the first time in two weeks felt I could take a sigh of relief, I began to feel the contractions coming back!
My new Dr informed my husband and I that on 12-22-12, he was admitting me to the hospital where I would remain until our baby was born.. Upon arrival I had IV fluids, multiple IV antibiotics (to prevent the possible deadly infection that I and my baby were very high risk to get) frequent heart monitoring, meds to stop contractions and received ultra sounds 3 times a week to check on the baby & my fluid levels!!
I spent Christmas, New Years and the entire holiday season in the hospital. I missed seeing my 4 year old daughter’s face Christmas morning when she woke up! Though it was very difficult… I knew I was doing all I could to give our baby Paige a fighting chance!!
As the weeks passed I was relieved to finally hit that magical 24 weeks! Just knowing if she was born she would have a chance made me feel a bit better!! Though she would be higher risk then even a typical preemie due to the low fluid!
On January 17th at 25 weeks and 5 days my water fully broke. We tried everything to stop labor but nothing was working! But like the dr said at this point every hour Paige was in the womb was beneficial. The next morning after 24 long hours of labor I began to experience horrific abdominal pain! I was then rushed to the operating room where my husband and I were informed that my placenta was abrupting & it was time to have our baby!
On January 18, 2013 (my Dads 60 birthday) at 10:27 am (25w5d) weighing 2 lbs even, we gave birth to our little miracle baby Paige!!! We had a close call with her the 1st day! Her oxygen dropped for 6 min and wouldn't bounce back up. Just when the Dr’s thought we were going to lose our baby, once again Paige proved them wrong and brought her oxygen back up!
The baby who I was told had 1 in 1,000 odds of survival decided she was going to be that 1!!!!
She is now 6 weeks old, weighs 3lbs 2oz, is off the ventilator onto the nasal cannula, advanced into the intermediate nicu and preparing to be moved out of the incubator and into a crib!!!
I owe my daughter’s life to mothers intuition (I knew my baby was strong, I could feel her kicking & there was no way that I was letting anyone tell me otherwise!!)
The Dr who I now look up to for giving us a chance and to the nurses & doctors from Kosair’s...I know that my sweet Paige is so strong and fighting so hard to be here!!! But Kosairs NICU has made her future possible!
These past months have been a blessing but very hard on our family at the same time. The day that my husband and I walked in to find the bow that was left with Lily’s picture on it, we were overwhelmed with joy! It brought a much needed smile to both of our faces! She was too small at the time to wear clothes and last week for the first time I was able to put her "lily grace bow on her"
Paige now wears her bow frequently as it’s the only one small enough to fit her & I tell her every time about sweet Lily Grace! When Paige grows out of her bow, it along with lily's picture and story will be placed in her baby book! Not only is Lily being Remembered now, her story will be told throughout the years, every-time we open up her baby book to reminisce!
Your story and what all you all do encouraged me to want to give back as well !!!! So my husband and I have signed up and started a team to walk in the march of dimes this year!! We will be captains of our team "Prayers for preemie Paige".
I pray since the walk is in May and the goal for Paige to come home is her due date April 27th..... That maybe Paige can join us as we walk to help babies such as our sweet girl!!! If indeed she is present for the walk, I would love for her to be wearing one of her "lily grace" bows and have Lily’s picture and story attached to the stroller or wagon so she will be there with us!!
If it wasn't for your inspiration I don't know if I would have gotten around to signing up and putting all of this together! So I want to be sure Lily is with us to continue to inspire me and share the story! Thank you for sharing Lilys story, putting a smile on our face when it was very much needed & inspiring me to get up, get out there and give back myself!!!
**Thanks Lori and Mikie… this is Lily’s Mom and this story and the nice things you said.. geez.. definitely made me cry. My family and friends will be so happy to hear how much the Lily Grace hairbow meant to you and your family!
Never Forget Lily Grace
Posted on Lily's Facebook page "Never Forget Lily Grace" on Saturday, March 2nd:
Lily's 6 month Angelversary: I made it.. I survived with a big headache and felt like I was hit by a semi truck at times but I survived (that is similar to how you feel after losing a child..the emotional and physical way you feel is absolutely horrible..) ❤❤
Please know that I read every comment on Lily's page.. it's just hard for me to respond to each one. I can't believe how many people responded or read my post about Lily's last 24 hours.. More than 22,000 people is what my Facebook page told me. Wow Lily.. a lot more people know about you now.. even if through that one story.
Thank you to everyone who did The Lily Grace Challenge too! Much appreciated.. time to start my day & get ready for my son Ethan's birthday party...the emotional highs and lows of being a grieving parent.. it can make you feel crazy sometimes
Lily's Prayer/ Thought Bear.... isn't this sweet??
Makayla stayed the night at her friends house last night (with best friends kids) and she came home with two new notes for Lily's bear (pouch in the back).. ❤❤❤ Kids are so sweet..
Makayla was so excited to share these notes with me... ❤❤
Lily's 6 month Angelversary: I made it.. I survived with a big headache and felt like I was hit by a semi truck at times but I survived (that is similar to how you feel after losing a child..the emotional and physical way you feel is absolutely horrible..) ❤❤
Please know that I read every comment on Lily's page.. it's just hard for me to respond to each one. I can't believe how many people responded or read my post about Lily's last 24 hours.. More than 22,000 people is what my Facebook page told me. Wow Lily.. a lot more people know about you now.. even if through that one story.
Thank you to everyone who did The Lily Grace Challenge too! Much appreciated.. time to start my day & get ready for my son Ethan's birthday party...the emotional highs and lows of being a grieving parent.. it can make you feel crazy sometimes
Lily's Prayer/ Thought Bear.... isn't this sweet??
Makayla stayed the night at her friends house last night (with best friends kids) and she came home with two new notes for Lily's bear (pouch in the back).. ❤❤❤ Kids are so sweet..
Makayla was so excited to share these notes with me... ❤❤
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