Thursday, September 27, 2012

For those that don't have Facebook.. my posts on Lily's page "Never Forget Lily Grace"- don't want you to be left out

HOW IT FEELS To LOSE A CHILD: 
I'm going to try & describe how it feels to lose a child since some people have asked how I'm doing & how I feel: for me, losing Lily caused physical and emotional pain. The minute Lily passed was physically painful beyond words.. It felt like someone took out my insides (not just my heart), threw it on the ground, chopped it up into a million pieces and had an inexperienced, crappy seamstress sew me back up. It even hurt to breathe or rather it was hard to catch your breath like when her last breath was taken.. It took my breath away. I still feel that loss of breath or pain at times too. I can see Lily in my arms with her right eye open peeking at me while she took her last breaths.. I can picture her gasping to take her last few breaths.. I can't get that image out of my mind sometimes. I cry uncontrollably at times but not really around people. I cry in front of people yes but the really painful, deep cries usually happen alone or Ricky may have seen it. You feel guilty to feel happiness when you do feel the happiness. I think about her all the time and I'll hold myself together for awhile but it doesn't last..... little things, things that I wouldn't expect make me think of that day or Lily so I cry. People don't make me cry- I'm always on the tipping point. I cry or feel sadness because I miss her so much. I have anxiety, get overwhelmed easily.. That's how I feel but my doctor said what I'm feeling is normal for the huge loss I've experienced. That's how it feels and maybe it's different for other people but that's how it felt to me & I hope you never go through this.. Ever. I do have peace in my heart because I (and my family, the nurses, doctors, etc) did everything possible to make that day as peaceful of a journey for Lily as possible and I gave her life plus a chance.. I never gave up on her and neither did anyone else. We all love her so much.. Please don't imagine that I'm emotionally unstable at this minute as I write this because I am not.. This is just how it feels


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The local newspaper, Courier Journal, opened up their story in todays paper for the Kentucky/ Indiana 2012 Heart Walk with the story of Lily Grace.. They took some of their words from her obituary because they called her Lillian... Lily Grace will never be forgotten ;) Love you baby girl




Photo: The local newspaper, Courier Journal, opened up their story in todays paper for the Kentucky/ Indiana 2012 Heart Walk with the story of Lily Grace.. They took some of their words from her obituary because they called her Lillian...  Lily Grace will never be forgotten ;) Love you baby girl
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Team Lily Grace for the 2012 Heart Walk in memory of our sweet Lily on 9/22/12
Photo: Team Lily Grace for the 2012 Heart Walk in memory of our sweet Lily on 9/22/12
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I couldn't resist visiting Lily later on Saturday, September 15th. I got really emotional after leaving Hobby Lobby (hair ribbon trip) so Ethan, Blake, Makayla and I went & put this mini flag out that we bought for Lily. It was 8 pm & it was getting a little dark but I really needed to see her. Ethan, Blake, Makayla & I sang "Twinkle Twinkle Little Star" to Lily & gave her kisses (kiss our hand & then touch her memorial stone). It was really special. I just miss her so much and I just want her to come back so bad. We hope she likes her flag- it has a heart sunshine, heart flower, and lady bugs. We thought she would like it.

Photo: I couldn't resist visiting Lily later on Saturday, September 15th.  I got really emotional after leaving Hobby Lobby (hair ribbon trip) so Ethan, Blake, Makayla and I went & put this mini flag out that we bought for Lily.  It was 8 pm & it was getting a little dark but I really needed to see her.  Ethan, Blake, Makayla & I sang "Twinkle Twinkle Little Star" to Lily & gave her kisses (kiss our hand & then touch her memorial stone). It was really special.  I just miss her so much and I just want her to come back so bad.  We hope she likes her flag- it has a heart sunshine, heart flower, and lady bugs.  We thought she would like it.





The song played at the end of Lily's funeral: CelineDion "Fly"


Another Facebook post from Lily's Facebook page:  Never Forget Lily Grace

"The song we played at the end of Lily's funeral.. Fly fly baby girl.. Beautiful song by Celine Dion called "Fly"

The song I sang to Lily when I was pregnant and the day she became an angel: Michael Jackson - "You Are Not Alone Lyrics"


Another Facebook post from her Facebook page "Never Forget Lily Grace"

"This is the main song I sang to Lily on the day she became an angel. I just wanted her to know that she was not alone.. ever. When it gets to the lyric of "how did love slip away?".. I sing "How did you slip away?" I am definitely struggling today as I just want to touch her, love on her, kiss her, look at her, sing to her, look into her eyes.. just one more time.."

Songs I sing to Lily and song from funeral: Selah - "I Will Carry You With Lyrics"


For those of you that don't have Facebook I will post some of my comments and links that I put on Lily's page.  If you have Facebook and didn't know about her page then you can simply search for "Never Forget Lily Grace" and like her page.


"Another song I sang to Lily and still sing to Lily when I visit her. "I will carry you.. while your heart beats here.. long beyond the empty cradle.. through the coming years.. All your life and all my life baby girl.. " This is also the song that we played to start her funeral service and we used in her picture/ video slide shows that we created. He chose me to carry you Lily and I would never trade that for anything.. this pain that is being endured now is worth the 18 days that we had you here on earth and the 38 weeks and 4 days I had you growing inside me- you and all my children are worth it.. Love you always and forever Lily Grace.."

Friday, September 21, 2012

Best 18 days...



A sweet friend shared a music video with me.  It is Taylor Swift and it is the most beautiful song ever, especially if you have lost a child.  It is so true... all the things she says.  You want to save them, fly away with them but fly together and stay here together.  I just wish she was here with us.  Please take the time to listen to the song.. Taylor is so talented.  Lily was the best 18 days of my life.. every day that I have my kids are the best days of my life too.  I just wish that Lily never would have been sick and never had to leave me. Those 18 days will stay with me forever.. she is forever loved, never forgotten.. Those were the best days because all of my kids were here on earth with me and I wish she never went away...never.. Love you Lily Bug!!

Thursday, September 13, 2012

Poem "Lily Grace" by Lily's sister Sarah


Lily's sister Sarah had to write a dramatic poem from another persons point of view and this is what she wrote.. so sweet.. get your tissues ready.  (Sarah is 16.. great writer, great big sister, great daughter, and big heart)  Great job Sarah!  Love you!  Amy

Lily Grace

By Sarah (Lily's sister)

I look around at the many faces surrounding me.
Tears fall down their eyes
And I don’t know why.
Each one takes a turn
Saying goodbye to me,
Telling me they love me,
Holding my hand.

I am taken off all the machines
And placed in my mother’s arms.
Music plays in the background
As I drift away.
I have to leave the place where I was so loved.

Now I’m somewhere else,
Somewhere familiar.
People here love me too.

I watch over the loved one’s that I’ve left,
I know they are grieving
But they must know that I am in a better place now.
A place where there is no pain or sorrow.
I am not alone up here,
There are many people here with me.
And I know there will come a day
When I see all the loved one’s
Who once surrounded me again

Tuesday, September 11, 2012

Dear Lily...

September 11, 2012

Hello baby Lily!

   Today you would be one month old.  We wish you were here with us so we could celebrate this milestone with us.  It is hard to believe that we anxiously waited so long for you to come and it has been one month since you arrived.  Sadly, it was one week ago today that we had your funeral and two weeks ago tomorrow that you became an angel in my arms.  We miss you so much sweet Lily!

   Your brother Blake asked if we would celebrate your birthday today by taking you cake.  I asked him who would eat it and he just shrugged his shoulders and said "I don't know".  He thought a minute and said "someone will eat it after we leave".  Your brothers and sisters are wonderful.  You would have loved them and actually I am sure you do love them, just not right here on earth with us.

   We all miss you so much and we wish you were here with us!  Happy 1 month birthday sweet baby!  Forever loved, never forgotten.....

Love you..

Mommy



Right after you were born.. you were crying so strong and loud!! Apgar scores of 9/9... great job!


I think you were more comfortable snuggled up in my arms :) I liked you there too..

You and your proud Daddy right before they took you to the NICU... were so comfortable here.. right were you belonged.. in our arms.. we love you!!

Happy one month birthday Lily Grace!!